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kazbo

Problems with your lap band? Speak up or shut up!

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I have just received the report from my complaint to AHPRA regarding the mutilation and misery my lap band has caused me.

In short - it mutilated my body, destroyed my life, disordered my eating, increased my depression and anxiety and was the biggest bad decision I have made.

The response from AHPRA (in relation to my complaints of ongoing pain and suffering from the damage from the lap band and port) is that there is insufficient evidence to link my pain with the 'alleged' pieces of silicon tubing stuck to my abdomen wall.

They have advised me that if they receive enough complaints regarding the pain, suffering, damage and other issues caused by the lap band (including the need for revision surgery) they will then be able to conduct the appropriate investigation to consider the lap band as a dangerous/problematic medical device.

I (as an individual) can do no more to get these revolting instruments of torture and waste of time, money and effort banned in this country.

In short - now is the time to SPEAK UP OR SHUT UP

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Good on you, @Kazbo,  for instigating this investigation.

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I applaud you for speaking up about the obvious pain you have been though and issues you had. I find it hard to understand that they don't seem to take the situation you are in serious either. i do however feel that banning the lap band is very unnecessary though. i have had mine since 2009 and have had no issues from the band itself only from human error, well surgeon error lol. i have come across many people who have the band and have no issues at all so just worry about the effect it will have pushing for the band to be banned, feels like a pun sorry. This is just my thoughts and am in no way trying to take away from the seriousness of the pain you have gone through with yours though. There is going to be good and bad with everything esp having a foreign object surgically put in my body but I was told the risks and took that chance. I do not however wish pain, misery, depression and eating disorders onto anyone and neither should anyone have to endure what you have been through. Just my speak up opinion :-D

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sadly - tales similar to mine (and far, far worse) are becoming more and more common now that lap bands have been around for some time.

The long term risks of having a device installed (and rubbing against a sensitive organ such as the stomach) will only see an increase in the number of patients who suffer from erosion and other complicatiions.

Sadly, the lap band was offered as a low-risk solution that is adjustable and reversable - what NO ONE ever tells you is that whilst the lap band can be removed, the damage it causes the person (scarring, adhesions, chronic reflux, eating disorders) is incredibly debilitating.

I am glad for those who have a lap band with no issues - it is a sad truth that those who experience success and no complications are very, very minimal.

For the majority who do have problems then they MUST speak up! for the majority this is a dangerous medical device that mutilates bodies and destroys lives.

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Long time since I was here... I'm with you. My band is rubbing constantly, I'm in pain 70% of the day, I can't say anything without feeling sick and so my weight now is 45.8kg on 160cm frame. I look terrible. I lost my job and relationships with friends and over the last month my partner of five years. My skin is terrible and I am so disordered in my eating. I cry most days and want to die. I would love to have it out, but the surgery cost prohibits this for me, so I struggle on. The vomiting, constant sliming, pain and lately being impacted and only defection every the days is terribly painful. I begged for a sleeve for these reasons, but was denied by the doctors as I was only just in the range for surgery. My family all suffer from obesity and it's related comorbidities and I wanted to be proactive. The band was out of desperation. Last week I spent three hours on the floor in pain and am so bony that I look like a skeleton; it truly is disgusting. I want it out. I want to eat food with other people, but most of all I'd like to not be in pain and to gain some weight before I am considered anorexic and hospitalised. 

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Oh @LissySarah  I am so terribly sorry.  What does your GP say? What about your original surgeon?  At your weight you are definitely underweight with a BMI of 17.89. Can you get someone to take you to hospital whilst you are vomiting and in pain? And you say at Triage in Emergency Admission that you can't take anymore and want to die?   And if you don't get admitted (even via Psych), contact the hospital's Patient Liaison Serve stating what happened. 

Can only hope that things improve - rapidly - for you x.

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OMG.. Im in the same boat as only qualify for band. im booked in for 19th July and am freaking out with all the stories on this. Hope you get something done soon.

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I am one of the horror stories... :( 

I had the band put in on the 12th June 2017.. I didnt sleep for 7 nights after surgery. I was literally losing my mind. I could even keep down sips of water without it coming back up. I also developed this terrible cough from the surgery which would not let down.. Went back to my surgen and he said there was fluid in my band which i saw him withdraw, he said nothing was in it now.. NOTHING SHOULD OF BEEN IN THERE IN THE FIRST PLACE!!!! . He said I should be better now.. Wrong!!

I had to go into emergency a week after surgery as I was that dehydrated,visual hallucinations, constant vomiting. I literally was in a living nightmare. They also found some air that was from surgery trapped in my chest and I had to stay over night as they wanted to monitor it. 

2 weeks after the surgery I still wasnt able to hold anything down. Back to surgen and he said everything that was happening isnt normal . I was one on the 1/6000 unlucky cases. My body just wasn't ajusting to the foreign object placed inside me. 

3 weeks after surgery and i still cannot keep anything down that is thicker than soup. I am soooo over liquids!!!!

I have made the decision to get this thing out of me. 8 days to go and counting !!!!!

I was not prepared for all the mental / emotional struggles that came along with this surgery. I put it down as one of my biggest regrets in life... 

on the flip side though I have lost 12kgs yay me, by the time surgery comes around I'll proberly drop another 5-6kg 

I try to look at the positive experience in all this... I have given myself a great kick start to reach ing goal weight.. instead of being 40kg from goal weight , I'll be 15 kg away . 

I understand the key to this weight loss thing... small portions ( no problem now my stomach has shrunk down to a golf ball) and being active !!! Thats it... 

So my experience was a bad and regretful one. 

Hopefully yours will be the opposite :/ 

Kazbo , have you had band removed yet? If so , what eating disorder do you have since it was removed? Can you enjoy eating food again without it coming back up ? 

 

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Long time since I was here... I'm with you. My band is rubbing constantly, I'm in pain 70% of the day, I can't say anything without feeling sick and so my weight now is 45.8kg on 160cm frame. I look terrible. I lost my job and relationships with friends and over the last month my partner of five years. My skin is terrible and I am so disordered in my eating. I cry most days and want to die. I would love to have it out, but the surgery cost prohibits this for me, so I struggle on. The vomiting, constant sliming, pain and lately being impacted and only defection every the days is terribly painful. I begged for a sleeve for these reasons, but was denied by the doctors as I was only just in the range for surgery. My family all suffer from obesity and it's related comorbidities and I wanted to be proactive. The band was out of desperation. Last week I spent three hours on the floor in pain and am so bony that I look like a skeleton; it truly is disgusting. I want it out. I want to eat food with other people, but most of all I'd like to not be in pain and to gain some weight before I am considered anorexic and hospitalised. 

LissySarah - dear lord! my heart goes out for you!

Surely there MUST be a way for you to have yours removed in the public system on emergency grounds?? this is no way to 'live'!

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Kazbo , have you had band removed yet? If so , what eating disorder do you have since it was removed? Can you enjoy eating food again without it coming back up ? 

 

Melty - I had my band of torture removed in November 2013. As soon as it was removed and I was allowed to drink, it was at that point that it really, truly hit home to me just how much stress and anxiety the band caused me when faced with swallowing anything. After around 6 weeks (and after my stomach unpleated), I could eat and drink absolutely anything (up until then, steak, salad and chicken breast hurt).

After my lap band was removed, I binge ate to make p for lost time on salad, sandwiches, yoghurt, FRESH FRUIT - OMG! it was BLISS to be able to eat food without having to add lashings of gravy or sauces, or to cook it until soft.

I still have disordered eating, mainly around the fear of hunger and I still associate hunger pangs with an emergency.

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the long term issue that I have with my stomach is that the lap band made the top of the stomach lazy so the sphincter does not close properly/tightly. This means that if I eat or drink something, if I then lay down or bend over it literally falls out of my stomach. It also means that I have chronic reflux that will never, ever go away (unless I revise to a bypass with a minimiser ring). I take a Nexium tablet once a day to manage the reflux.

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@LIssySarah and @Melty - PLEASE lodge a complaint with AHPRA!!! it is only by people like you speaking up will this dangerous medical device be finally banned in this country!

 

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Hey Kazbo

I haven't been in here for AGES so have only just seen your post. Did you end up having the sleeve done?  

Am so sorry that you are having such a dreadful time with it.  :( 

S

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LissySarah - dear lord! my heart goes out for you!

Surely there MUST be a way for you to have yours removed in the public system on emergency grounds?? this is no way to 'live'!

Agreed, that sounds truly awful!! You can't go on like that! :(

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I am one of the horror stories... :( 

I had the band put in on the 12th June 2017.. I didnt sleep for 7 nights after surgery. I was literally losing my mind. I could even keep down sips of water without it coming back up. I also developed this terrible cough from the surgery which would not let down.. Went back to my surgen and he said there was fluid in my band which i saw him withdraw, he said nothing was in it now.. NOTHING SHOULD OF BEEN IN THERE IN THE FIRST PLACE!!!! . He said I should be better now.. Wrong!!

I had to go into emergency a week after surgery as I was that dehydrated,visual hallucinations, constant vomiting. I literally was in a living nightmare. They also found some air that was from surgery trapped in my chest and I had to stay over night as they wanted to monitor it. 

2 weeks after the surgery I still wasnt able to hold anything down. Back to surgen and he said everything that was happening isnt normal . I was one on the 1/6000 unlucky cases. My body just wasn't ajusting to the foreign object placed inside me. 

3 weeks after surgery and i still cannot keep anything down that is thicker than soup. I am soooo over liquids!!!!

I have made the decision to get this thing out of me. 8 days to go and counting !!!!!

I was not prepared for all the mental / emotional struggles that came along with this surgery. I put it down as one of my biggest regrets in life... 

on the flip side though I have lost 12kgs yay me, by the time surgery comes around I'll proberly drop another 5-6kg 

I try to look at the positive experience in all this... I have given myself a great kick start to reach ing goal weight.. instead of being 40kg from goal weight , I'll be 15 kg away . 

I understand the key to this weight loss thing... small portions ( no problem now my stomach has shrunk down to a golf ball) and being active !!! Thats it... 

So my experience was a bad and regretful one. 

Hopefully yours will be the opposite :/ 

Kazbo , have you had band removed yet? If so , what eating disorder do you have since it was removed? Can you enjoy eating food again without it coming back up ? 

 

You must've had your band out by now? How is it going? What a horrible thing to go through, you must've been so upset and disappointed.. :(

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Hey Kazbo

I haven't been in here for AGES so have only just seen your post. Did you end up having the sleeve done?  

Am so sorry that you are having such a dreadful time with it.  :( 

S

Hey Shorty

Yes I had the sleeve in March 2014. Should have had a bypass - weight loss stopped after 5 months and wouldn't budge past 87kgs. I have chronic reflux (treated with Nexium every day)...but hey, that's life! I'm making the best of it as I don't really want any more WLS (unless absolutely necessary)

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have not been on here for ages. My sister has been totally stuffed up by her sleeve (she never was banded)  she spends most of her days vomiting, is heading back to the city for more appointments to see what they can do about it. seems there are issues with all WLS, none are immune to issues.  Had my band now for 5+ years, so far so good but just wish I could lose more weight. sort of staying around the same, have managed to stay the same weight for ages now, prefer to go downwards :-)  Only commenting because people seem to think its only bands that have issues. My sisters issue is pretty bad but I guess like your band experiences it just happens to some and not all people

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@ladyfortythree AKA Julie - I am so sorry to hear about your sister. I hope that things improve for her - please keep us updated.  

Hi thanks, I am only occasionally lurking on here these days. Still have my band, lost and  regained but losing again. I've only managed about 8 kilos in the last year but at least its going down. My sister has some multiple issues some sleeve related some not but she is due to go into hospital to have her stomach dilated, hoping it works, she still throws up most meals, Her oesophagus  is stuffed  basically now and sometimes the muscles dont push the food down so it just sits until she throws up, sometimes it goes down.  She has been told that some of the surgery they want to do will help but basically as time goes on she will end up on an all liquid diet. we are hoping that will not be for a long time. 

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I am banded (twice), 9 years now. Not a lot of problems apart from gaining weight....but that is my issue, not the band. I have tossed up having a sleeve done but I see there may be problems coming forth in the future. We all thought that banding was the answer to our weight loss prayers but years on we are seeing many people are having lots of different problems. It’s still relatively early days for the sleeve still, are we set for issues in the future? There are lots who seem to have gallbladder problems after sleeving, many go on to need bypass surgeries, reflux seems to be a massive problem. And as we know neither is a miracle cure, weight can be regained from both types of surgery. I’m not putting down anyone’s choice just thinking out loud. I still haven’t made my own decision as yet. I’m very sorry that any of you are having problems.

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I was banded in 2009 was the biggest mistake of my life.. I was told the very rare risks that were briefly assessed to me as i was told they rarely happened.

Was told that erosion rarely happened.. well it happened to me and it nearly killed me and gave me problems still till today. My surgeon told me that I was just so unlucky that this never happens to anyone only to find that it dod and as years went by i heard of more and more cases wether it was constant vomiting, slipping, port flipping erosion and so on and so on. My band was in for only a year and it eroded my stomach to the point where i had a hole in my stomach and food was falling throigh and caused a large infection. Had emergency surgery to have band removed needed my stomach repaired. Later o had two collapsed lungs. Then recieved a hematoma on my liver which was close to my heart so they couldn't surgically do anything. Was in and out of hospital for 6 months with infections from hematoma so missed out on my child going through all this it nearly took my life. I now have a fistula on my osephagus that needs to be repaired soon. The band gave me nothing but trouble for those that have there bands still are very lucky but i have heard of very little that have had no problems what so ever. Even.the constant vomitong.is ridiculas and causes problems eventually. I paid 18000 of my own money for my band lost all my.weight then had it removed nearly took my life put all the weight back on and now not even offers an alternative.. wish I had done the sleeve from the start or they should have eventually done just that instead just left stranded with no care at all. Really ridiculas.

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On ‎7‎/‎2‎/‎2017 at 7:04 AM, LissySarah said:

Long time since I was here... I'm with you. My band is rubbing constantly, I'm in pain 70% of the day, I can't say anything without feeling sick and so my weight now is 45.8kg on 160cm frame. I look terrible. I lost my job and relationships with friends and over the last month my partner of five years. My skin is terrible and I am so disordered in my eating. I cry most days and want to die. I would love to have it out, but the surgery cost prohibits this for me, so I struggle on. The vomiting, constant sliming, pain and lately being impacted and only defection every the days is terribly painful. I begged for a sleeve for these reasons, but was denied by the doctors as I was only just in the range for surgery. My family all suffer from obesity and it's related comorbidities and I wanted to be proactive. The band was out of desperation. Last week I spent three hours on the floor in pain and am so bony that I look like a skeleton; it truly is disgusting. I want it out. I want to eat food with other people, but most of all I'd like to not be in pain and to gain some weight before I am considered anorexic and hospitalised. 

If you are in Melbourne I would present at the Alfred Hospital.  They have a public program and have specialist surgeons on staff 24/7.  Being a public hospital you won't be charged.  I had lap band done in the public system through the Alfred and after getting gastro (from work) and having the band slip and erosion had the band removed after 6 years. I will admit that I was going well sitting at about a size 10 and happy.  Once the band was removed blew out to 125kg again.  I have now has the sleeve (unable to do another band due to erosion) and down to a size 10 again.  All my surgeries covered under medicare and if when I was unwell presented at casualty and was always seen.  I was advised not to bother with a ny other emergency departments - just go to the Alfred Emergence Department.

Wishing you the best of luck.

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